I am following Emily’s Story on Caring Bridges since December when My Girl Scout troop made her cards and sent to her for the Holidays.

She was was born with an intraventricular arachnoid cyst that caused hydrocephalus and had her 1st surgery when she was six weeks old. That was just the beginning of her neurosurgical journey!!!

She is the age of my Oldest daughter, 14 but her Teenage years must be nothing like my daughter is experiencing. It just touches me inside that her “teen years’ are not about boys, giggling, crushes, etc. but about pain management, surgeries and trying to stay out of hospitals.

I have her “blog at Caringbridge set , so I get a email when they update.
It’s a mixed blessing, because , I worry when I get a email and I worry when I don’t.

I’m such a “Mom”
“CaringBridge® (www.caringbridge.org) is a free, nonprofit web service that connects family and friends to share information, love and support during a serious medical condition, treatment and recovery. ”